Tomorrow Is Too Long to Wait for Inclusion

You Just Can’t Take Me Anywhere!

can't take me anywhere

My parents used to say, “We just can’t take you anywhere,” meaning I could not be trusted not to cause a “scene” – and for parents who valued appearances in society as they did, this was quite the denouncement.

It has only been four months since I emerged from extreme isolation and denial of my social difficulties – the way I dealt with it was by NOT dealing with it: staying isolated and alone, the way I like it. I honestly prefer to be alone, and, until recently assumed most autistics were like me.

NOT so. Even some of the most severely impacted are not as misanthropic as I; in fact, they are surprisingly affectionate. I am beginning to consider perhaps my hermit-like qualities are not even related to autism at all. However, the fact remains – I am still as averse to being with other people for more than an hour at a time, maximum. I simply do not LIKE them when I am required to be in their presence. They irritate me supremely and my hostility and aggression, when irritated, is still not completely under my control. I no longer profess to “hate” them as I did vehemently when younger (and before Buddhist training), but still resent any occasion where I must interact face to face, unless it is a structured activity with clear rules, like sporting activities or firefighting. One on one contact is preferable, as there are not as many variables to attend to, but I prefer digital and online communication – I express myself best there and do not get as frustrated, as I control the interaction and can step away when necessary when getting frustrated.

As a child and adult (up until 1999, when my last documented episode of public aggression occurred), I was extremely aggressive, and, for this reason, was placed in very restrictive settings where they could physically restrain me. I saw no reason not to be so violent until multiple arrests and beatings from the police forced me to re-evaluate my public lashing out. At that time, I discovered Buddhism and its practice of non-violence and rose to the challenge of changing my behavior. I was successful; however, my primary strategy was to limit my exposure to provocative situations, which meant not venturing into public except when I most others are not present- i.e., never being out in rush hour, going to an all – night supermarket at 4 AM, etc. This did not completely curb my physical and verbal assaultiveness – as recently as a few weeks ago I hit my support person as he was attempting to restrain me from engaging in another obnoxious behavior – disruptive yelling late at night. The difference is now I feel remorse and truly do not want to be this way.

Here is an article on aggression in ASD: Aggression in autism spectrum disorder: presentation and treatment options

The article above spends much time discussing antipsychotic medications, which have been tried on me, to no avail. First off, I am extremely sensitive to the neurological side effects such as Parkinsonianism/Extra Pyramidal Symptoms. My diaphragm seizes up, and I cannot move the muscles needed to breathe. This makes antipsychotics potentially deadly for me. They also did not ameliorate any of my behavior issues, and since I do not have a thought disorder (schizophrenia), they are useless and harmful for me. Ritalin and the stimulants, which I was on for many years, also do not help in the long run. Neither do any of the other classes of drugs and, believe me, I have been on them all. Buddhist practice and the willingness to change are the only things which have worked for me, and for that I am grateful.

Thank you, Autistry Studios, for helping me seek resources which may help with self-control, like this one:

aggression2

It may seem simplistic, but I have never attempted anything like this. Only the challenge of following the Buddhist precepts has inspired me to try. When others were trying to control me, I resisted strenuously -and my will is incredibly strong.

I am doing better regarding aggression, but have a long way to go – had I not ventured out on those two days I may still be under the illusion I now have it all under control.

On the bright side – I no longer fight with strangers – nearly all aggression is verbal now, and even that is infrequent as I know my triggers and usually avoid them. I also did not wear my weighted vest, which DOES help calm me -and both days I FORGOT MY SQUISHIES! It is remarkable how much these items calm me. It is also remarkable how often I forget this.

As far as lashing out at my support guy – I AM sorry, and even that episode was minor.

Photo Credit: Ben Seidelman/Flickr

Source:  Just Can’t Take Me Anywhere! – Autistry And Me

I am Christian Espicha, an adult woman with autism. Though diagnosed as a young child with autism, partly because I also possess a genius IQ, I did not receive appropriate services until recently when I became a client at Autistry Studios in San Rafael, CA. Recently, at age 45, I was the oldest member of the Humboldt County Structure Firefighting Academy to graduate. Also, I completed EMT training and worked as a firefighter/EMT in Trinity County, California. I performed, with my fellow firefighters, mountain rescues, and recoveries assisted the Forest Service with fires in the Trinity National Forest and assisted with water rescues/recoveries on the Trinity River. I am also a writer and artist. See my website at https://www.autistryandme.wordpress.com and autistryandme on Facebook and follow me @Screenshotaut on Twitter.

 

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